Thursday, September 13, 2012

A story about girl I went to high school with . . .

Today, I want to tell you about Katie.  She and I went to middle and high school together back in Georgia.  She has a two year old son named Michael, and he has something called MLD.  Until Katie's son was diagnosed, I had never heard of MLD, but I read her blog posts and her facebook updates, and then I couldn't stop reading about it.  MLD--metachromatic leukodystrophy--is cruel and unfathomable. She and her husband are going through every parent's worst nightmare.

Below is a video that the local news station did on Katie's son.
 
You can visit Katie's blog here.  If you have anything to donate, they'd appreciate it, as Michael's medical bills are outrageous (and they have to travel to Pittsburgh to see a specialist).  They both have to work, even though they wish they could spend every minute with their little son.  But if you don't have anything to donate, that's okay.  Katie and her husband really just want to spread awareness, so by just watching the video clip or reading their blog--you're doing your part.

10 comments:

AmericanBridget (Jones) said...

Crushing. Simply crushing. What an amazing set of parents that little boy has. I'll see what I can donate to their cause.

Thank you for sharing this.

Micaela said...

I have tears rolling down. You used the best words to describe this-- cruel and unfathomable.

My heart hurts for his parents. I just want to hold Michael. Such a sweet boy who you can just tell is so very loved.

Claire, thank-you for sharing this.

Krystal said...

ohhh gosh, I'm all choked up - that is so incredibly sad. I'm so sorry for your friend.

Dancing Branflake said...

You are a saint for sharing this. Thank you. It helps them in so many ways.

Marz said...

I'm sitting at my desk at work bawling for this poor family. Like Micaela said, I wish I could just hold Michael :( Thank you so much for sharing and spreading awareness about MLD. What an amazing and inspiring mother Katie is. How hard it must be to stay strong when your whole world is slipping away and there's nothing you can do about it :( Really puts things into perspective. Love you Claire xo

J. said...

This is such a tragic story. God bless that young family. My heart breaks for them, and at the same time I am inspired by their strength. xoxo

drollgirl said...

this is so sad. i just feel terrible for them.

a co-worker's wife was 8 months pregnant when they found out their baby would have cystic fibrosis -- a terrible disease. they had to decide if they wanted to keep their son, or have a late term abortion. they studied up on the disease, agonized, and kept the baby. he is an adorable little boy, but he is a very, very, very sick little boy. he is in the hospital constantly. he was also recently diagnosed with diabetes.

i think the medial bills topped $1 million within his first year of this little boy's life. the parents are so stressed and work so hard, and do all they can to help their son.

these things are so difficult, particularly when you are close with the ones going through it.

will send a donation....

Meghan said...

I cannot even imagine what they must be going through. Definitely sending prayers their way!

Faiza said...

Thank you for sharing this story Claire. I have never heard fo MLD either.

Sending my love and light into the universe for Michael...

Jo said...

this is so heartbreaking! i had never heard of mld. this poor, sweet family. i cannot even imagine the pain they are all suffering. i'll definitely keep them in my prayers.